EDS Research Index

HEDGE is studying the genetics of 1,000 people with hEDS

research programevidence: emergingone underlying source

HEDGE (Hypermobile Ehlers-Danlos Genetic Evaluation), listed among The Ehlers-Danlos Society's research programs, is studying the genetics of 1,000 people with hEDS. In October 2025 the society said it expected the first publications in late 2025 or early 2026, and that timelines may shift.

By Hraness · Drafted with AI assistance.

Not medical advice. This page summarizes research and does not recommend any course of care.
EDS typeshEDS, HSD
Diagnostic criteria2017 International Classification
Last checked2026-09-16
Reassess by2026-12-16

Evidence

registryregistry report
communitypatient-organization synthesis

Both pages come from The Ehlers-Danlos Society.