In a registry survey, people with hEDS reported about ten other diagnoses
findingevidence: probableindependent evidence agrees
A Global Registry survey of 505 people with clinically confirmed hEDS, published in 2023, found an average of 10.45 other diagnoses. Anxiety, depression, and migraine were the most common. Participants most often rejected functional neurological disorder, multiple sclerosis, and fibromyalgia as wrong, and most often endorsed POTS, cervical instability, and MCAS as accurate.
Not medical advice. This page summarizes research and does not recommend any course of care.
| EDS types | hEDS |
|---|---|
| Date | 2023 |
| Diagnostic criteria | 2017 International Classification |
| Last checked | 2026-09-16 |
Evidence
registryregistry analysis
clinicalqualitative study
A 2025 qualitative study describes misdiagnosis and dismissal on the way to an hEDS diagnosis.