Craniocervical instability and tethered cord in hEDS: contested
findingevidence: contestedindependent evidence agrees
Craniocervical instability (CCI) and tethered cord come up often in patient communities, and cervical instability was one of the diagnoses participants most often endorsed as accurate in a Global Registry survey of people with hEDS. Controlled evidence is limited, and surgery for these conditions carries real risk.
Not medical advice. This page summarizes research and does not recommend any course of care.
| EDS types | hEDS, cEDS |
|---|---|
| Diagnostic criteria | 2017 International Classification |
| Venues | r/ehlersdanlos, EDS and HSD Support Community (Inspire) |
| Last checked | 2026-09-16 |
| Reassess by | 2026-12-16 |
Evidence
communitycross-venue pattern
registryregistry analysis
Cervical instability was among the diagnoses participants most often endorsed as accurate.